Saturday, October 31, 2009
Friday, October 30, 2009
Not a good night....
Other unfortunate news:
Both Nicole and I are heartbroken for a family we met here at the McDonald house. We spoke with a guy in the elevator one day because he looked like he needed a friend. He told us about his son who has cancer...everywhere. We've been following up with him when we see him. Today he shared that he has to let his 9 year old go, pull the plug. Nothing else to be done. Say a little prayer for Xavier Hernandez as he joins the other angels.
For a place that has so many miracles happen every day, it is hard to see past the sad stories and upset faces. Very draining emotionally for both Nicole and I. Especially because we are both teachers and are invested in the lives of so many children.
Makes you realize you need to treasure every second that you have with your family.
No news is good news
We are trying to stay on the mantra of they are doing what it best for Travis.
As said many times to us in the past week. Travis is the Boss. We as new parents are finding that out really early.
Roger & Nicole
Thursday, October 29, 2009
All of the love and support we have got from so many people are part of the TEAM. This little boy has inspired me so much already in just 6 days. I can't wait to see what his next feat is.
GO TEAM TRAVIS GO
Pulmonary Artery Band Surgery
Pulmonary Artery Band
Doctors place a band around the Pulmonary Artery to restrict the blood flow going to the lungs called a Pulmonary Artery Band.
This limits the amount of blood sent to the lungs making it less congested. However, as your child grows he will need more blood sent to the lungs which is limited by this Pulmonary Artery Band.
To keep the blood flowing to the lungs a shunt is constructed from the newly formed Aorta to the main Pulmonary Arteries.
We understand that he needs this surgery to survive. It may not be easy to look at, but we feel that if your reading this blog that you might want to see this very important step in his journey.
Thanks for the love.
Click on the link below to skip the pictures
Post Operation Video - 10/29/2009
Pre and Post Operation Pictures
We are so thankful that he came and gave blessing to our baby boy, surgeons, nurses, and
Post Operation with a few more tubes.
Travis is actually really comfortable and doing well.
Out of Surgery
This just puts our timeline for baby Travis to come home back further than we had hoped.
Thank you to all of you who took a second in thinking about our precious little boy Travis. We definitely feel the love and support from all over.
Roger & Nicole
Illustrations of what HLHS is and surgeries. Thanks to the Dunn's and Grace
We decided to take Dr. Lamberti's advice an have him perform the P.A. band procedure today. He did mention that if all goes well that the Norwood Surgery would become a lot easier for him to perform and less stress on baby Travis. He actually said that he would prefer to perform the P.A. bands on all HLHS babies, but would rather not put the babies under another open heart surgery.
So we are waiting in our room waiting for the pager to go off. The surgery will only be 3-4 hours in lenght.
This has been an emotional morning for both Nicole and I and will continue to need your support and prayers.
Here is a link to the Hybrid Procedure which Travis is going through right now.
Videos of 10/28/009
Pictures 10/28/2009 - An Amazing Day before the Storm
I can't believe how amazing it feels to feel him in my hands. Indescribable!!!
Wednesday, October 28, 2009
Deja Vu - Ryan DiCarlo
This is Ryan post operation.
Eyes Wide Open Video
Videos of 10/27/2009
Daddy took his blanket off so he could get a video. Dang Paparazzi!!!
Tuesday, October 27, 2009
Guess whats missing? Yep, your right my respirator is off.
Travis got extubated today and was breathing on his own for the majority of the night.
This is a sign that he is strong. He will need that strength to get through the surgery and
post operative care.
Eyes wide Open...
Videos of the last 3 days
Monday, October 26, 2009
Visitors and the Latest
The DiCarlo Family
Pictures from 10/26/2009
This is the Life with a Cardiac Baby
The good news today is that Travis is doing pretty well. We were under the assumption from the conversation I had with the cardiologist that Travis would need an immediate surgery Monday morning. This was based on his condition at birth and all of the studies done in the first day of life. This morning the cardiac team of doctors (10 or so that I saw) had a meeting to discuss the plan for Travis. They now think that he is stable and can have surgery on Thursday like originally scheduled. This is good news, because Nicole and I can bond with him a little more before the big day. But as told to us several times in the past 3 days these plans can change any minute for several different reasons. Including Travis' condition, babies that need immediate surgery, and the funny one is Dr. Lamberti's whim. Dr. Lamberti is one of the best doctors in the world and he does stuff based on his years of knowledge.
Today was also special because Nicole got to spend time with Travis. She got discharged from the hospital and rushed over to Childrens to see him. We spent most of the day with him and his Nurse Denise. It was special to see Travis and Nicole bond again. He was the most active I have seen him in his 2 days at Childrens. He tried to open his eyes to check us out, but his poor little eyes are swollen from all of the medication that he is on. He definitely could recognize her voice and showed a lot different movement that he has not shown before.
We had another long day and look forward to what tomorrow brings...
Sunday, October 25, 2009
Big Day with Mommy
We are not allowed to hold him because of all of the I.V.'s, but the Nurse had Nicole help her fix the bed and she got to lift him up.
Teaching Travis Football and Talking Sports
Pictures from 10/24/09
Saturday, October 24, 2009
Things went well with the MRI
Baby Travis' Birth Story
They wisked him off before I could touch him or get a good look at him. He was transferred to Children's Hospital before I was released from the recovery room but they did bring him by on his way out and I was able to say hi and touch his little face. Roger is staying there with him and I am here at a different hospital for a few days. They are running tests on him with a possible surgery date of Monday.
The teams at both places have been really great. The L&D nurses were great and the doctors have been very kind. We had two real special labor nurses...Noelle, Dolores and Jan. They were so wonderful!!! I am trying to walk around a lot so I can get out of here and be there ASAP. It is so very hard to be here. Please keep the prayers coming!! Travis is headed to his MRI right now. We'll post again later.
Roger has been with him and talking to him a lot so he knows someone is there. I can't wait until I can talk to him because dad is just talking about sports, I'm sure. My good friend Jen printed out a bunch of pictures for me to hang in my room here and I just sit here staring at his sweet little face....he is definitely Roger's baby. If I wasn't cut open and sore from pushing, I'd question my involvement.
Roger says Travis is going for a full MRI today around 2:30pm to check how everything is working. So, pray for some positive news from that. And pray for all three of us to have the strength we need over the next few weeks. Roger needs strength to be at RCHSD making decisions for Travis, I need strength to heal and get over there soon, and of course...Travis needs strength for his surgery and to know we love him so much!!!
We will update the details of what is going on Soon
Will update later.