Monday, February 20, 2012
One final surgery
Sunday, February 19, 2012
Balloons for Travis
The worst kind of wake up call.
Saturday, February 18, 2012
Our lives were forever altered...
Friday, February 17, 2012
One year. 365 days. 8760 hours…..since I last held my baby. We were terrified driving to the hospital. We had a bad feeling about it. We were there early and Travis was the cutest in his jammies snuggling with us as we waited to take him to pre-op. He wanted NOTHING to do with the blood pressure machine, the pulse ox or ANYONE in scrubs. He watched elmo with us while we waited for the paperwork and call time. We kissed him goodbye and he cried in the arms of the nurse all the way down the hall. We kept it together until the doors shut. It would be 10 hours until we saw him again. His surgeon was haggard looking but pleased with the surgery. How could we have known that things would change so drastically during extubation. We would never see him awake and alert again. 48 hours later, he was gone.
But we have to live it.
We live it in every family photo. We live it in every other CHD warrior. We live it in every smile Addie gives us…her smile so achingly like her Bro-Bros. We live it in all the “What Ifs”. We live it in all the regret. We live it every time anyone asks about our kids, or how many kids we have. We live it when people talk about their son(s) as if we never had one. We live it in every birthday. In every little boy we see. In every one of those shattered dreams we had and all the hope we held.
I miss my boy.
The depth of that statement is more than I can ever fully express.
Sunday, February 12, 2012
Photo Challenge - In memory of Travis
PHOTO CHALLENGE: Over the next week if something catches your eye that reminds you of Travis, take a picture of it and e-mail it to us. It could be something that reminds you of him or just something extremely beautiful and full of light (like Travis). We'd like to gather all these photos and turn them into something we can keep and look at often.
Please pick your favorite photo and post it on Team Travis Facebook page or e-mail it to me by Monday, February 20th. Thank you!
Thursday, February 9, 2012
Sharing Travis' story
Here is the article. STAYING STRONG by Terry Monahan
A few errors....1) 'most' HLHS patients do not live into their 30's. Most do not. The surgical approach is too new to know how long anticipated survival is. 2) You all know travis passed away after his FOURTH surgery....not his first.