Team Travis: Video Update 11/10/2009

Wednesday, November 11, 2009

Video Update 11/10/2009

Travis was just relaxing after his dinner last night.

5 comments:

AnonymousNovember 12, 2009 at 7:58 AM
Good looking little dude Rog! Thoughts and prayers for your family.
Ryan G
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AnonymousNovember 12, 2009 at 10:57 AM
Nicole and Roger-
What a precious little guy. So darn cute. Breaks our heart to see him so fragile. We just know that he will do fine with the surgeries and grow to be a strong little boy. We are praying for all of you every day.

Love you all Aunt Libby & Uncle George
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Jane SinclairNovember 12, 2009 at 2:27 PM
You are so lucky! He is just a beautiful baby boy. Look how curious he is! I know he will do well with what lies ahead and he won't remember any of it. It will be what you relate to him and this blog is a great gift.

Take care of each other and your health,too.
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AnonymousNovember 14, 2009 at 1:03 PM
Love that video! What a great SON! Pator Mark
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AnonymousNovember 19, 2009 at 6:50 AM
Nicole and Roger,
What a precious gift little Travis is. By sharing your story with everyone is reconfirming what is important in life. I can see how much love you have for Travis through his eye's. I know he will grow up to be as Amazing as his parents are.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....