This week was rough for a myriad of reasons. First, and foremost, it has been an emotionally heavy week on my heart. This week heaven welcomed 6 baby HLHS warriors. It is so hard for me to hear news like this and I can't even imagine how these parents are feeling. Well actually, I can. I imagine it all the time. I can't stop myself from imagining worst case scenarios. It is hard to hold onto your hope when so much sadness has come to the CHD community. Please keep all these little angels and their families in your prayers: Wyatt, EJ, Kale, Harlow, Sammy, and David.
Secondly, I am back to work. Work itself is fine. I just have this huge amount of guilt. Guilt that I am not spending enough time with Travis and Addison. I get home at 4 and Travis is in bed by 7:30 or 8. And in between that time, there is baths, dinner, etc. :( I just miss them. I feel like I don't hold Addie enough. Since Travis was the first and I didn't go back to work until he was 10 months old, he was held ALL.THE.TIME. I feel so guilty that I do not have the ability to do that for Addie.
Thirdly, next Friday is Travis' cath procedure. I am a bag of nerves for it. His reaction to the last one was so bad and I am scared it'll be the same this time around. I am hopeful that they will be prepared this time and anticipate an allergic reaction to the anesthesia. I am hopeful that they will be able to open up all the narrowing. I am hopeful we can push his Glenn/Fontan out until the end of the (17-20 month) window that we were giving. Please keep Travis in your prayers this coming week.
I'll leave you with some pics of my cute loves!
Travis practicing his coloring
Addie is such a smiley baby these days