Team Travis: Tuesday Evening Update

Tuesday, November 24, 2009

Tuesday Evening Update

Today was an uneventful day. They really did not change much with Travis today. They want to keep him stable and waiting to see how everything looks. They did a ton of tests last night to figure out if there is an infection. So far, all of the culture tests have come back looking good. Nicole and I got to spend alot more time by the bedside today. He opened his eyes a couple of times for a second. We are just playing the waiting game and seeing what the next step will be.

2 comments:

AnonymousNovember 24, 2009 at 10:53 PM
What an incredible little trooper you have! With the way Travis battles, you're sure to have a lineman on your hands in a few years :)
Thoughts and prayers continue to go up for your sweet baby boy!
-The Simmonds Family
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Wodzisz FamilyNovember 25, 2009 at 6:18 AM
He is so cute. Not too much swelling either...or you take really good pictures. I am praying for an uneventful, fast recovery for Travis. You will definitely learn a great deal about patience...I know it is a skill I was and still am lacking.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....