Tuesday, October 23, 2018

Celebrated Travis' 9th birthday by serving dinner at Ronald McDonald house. The amount of support from people that were there to serve and help, that donated books or donated costco cards is truly overwhelming. We can never thank people enough for the show of love for our family. #teamtravis


















Friday, February 19, 2016

It's all About Awareness

I had the opportunity to share Travis' story to our boys and girls basketball team yesterday. Since it's been five years, some of these kids hadn't heard his story.  It's always hard to to share the details of his fight with hypoplastic left heart syndrome (HLHS).  It's important to us that we continue to bring awareness to congenital heart defects and honor Travis' short little life.
Travis taught us so many things:  resilience, joy, positivity, and how precious life is.  If I could just make one kid look at life a bit differently, then it was worth it.
His angelversary happens to be today, the night of our crosstown rival game at Mission Hills. Both San Marcos programs will be wearing special warm-up shirts to school and to the game.   

Travis loved going to basketball games with daddy.  One of the pictures below is the last game Travis attended, it was at Mission Hills.  I'm sure he'll be there with us tonight.

Friday, October 23, 2015

Happy 6th Birthday Travis




Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.


Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.


Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....

Wednesday, October 22, 2014

Travis 5th Birthday

Happy 5th Birthday

Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.


Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.


Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....

Tuesday, February 18, 2014

REMEMBRANCE CHALLENGE: 3 for 3 RAK for Travis

For a few weeks I have been contemplating what I'd love to do to help honor and remember Travis' short life.  My mind kept coming back to the lessons he taught me…the most important is kindness (because you never know what people are dealing with/going through).  With that said, I figured the best way to get through this awful time would be to spread kindness.  Would you help?

Here is the challenge:
Between today and tomorrow (Feb 18-19th) think of 3 random acts of kindness
Spread and share them (via Facebook https://www.facebook.com/groups/128207457251243/ or e-mail)
Tag #RAKforTRAV, Roger and I  (if posting a photo add a short description)

The acts of kindness don't have to be big at all.  Here are some ideas:
Sincerely complement someone you don't know
Hold the door open
Buy someone a coffee
Pump someone's gas
Take your kids out for ice-cream
Make your spouse a card
Call someone and tell them you love them
Make cookies for neighbors
Tell someone why you are doing what you are doing….spread his name
And, here is a website with more ideas… http://www.randomactsofkindness.org/kindness-ideas


I'd love to see simple conscience acts of love spread in Travis' name.  Please join me in remembering our sweet, loving boy.  Can't way to see the LOVE!!!!!!


Wednesday, October 23, 2013

Happy 4th Birthday

Travis Gary DiCarlo
Travis Tribute Video
Travis Tribute Video - Vimeo
Travis Tribute Video - Youtube

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.


Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.



After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.


Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly..... 

Sunday, October 20, 2013

Can I be real with you?

This is painful.

It's hard.

Each day, it hurts.

We continue to walk around, handle our commitments, enjoy our friends and family, laugh....but, in the quiet, there is pain.   A pain very real and still very present.  I don't even like to be alone anymore.  Too much down time leaves me reeling.

It hurts me when people allude to me being negative.  I KNOW I'm negative.  I KNOW I fight demons every darn day.  I feel pretty happy with the fact that I can function as a human being some days.  MY grief manifests in weird ways.  My mood can turn very dark, very quickly.  I'm cynical.  I overeat.  I'm lonely, when people are everywhere.  I worry....ALL THE TIME.  I am forever waiting for the other shoe to drop.  People don't get that.  I've SEEN the horrors that  this world can have.

I held my baby boy in my arms as his heart stopped.

I saw that same heart beating from INSIDE his opened chest numerous times.

We stood outside his room while nurses and doctors tried their hardest to save his life.

I was told my sweet boy had no more brain function.

I had to choose that enough was enough and it was time to let go.

I don't know how to live normally anymore.  I can't even remember what it felt like to be joyful and worry free.  I can't remember a time when I woke up and didn't have to fight with myself to make the most of the day.  Through the fog of depression, I scarcely remember who I am.   And, when I do....it seems like a stranger.    I don't recall what it's like not to panic when I hear beeping or have an anxiety attack with the smell of soap.   I don't know what it's like to watch my son grow up and the pain in watching yours is sometimes too much for me to bear.

It is what it is.

This journey ain't for the faint of heart.