Team Travis: Pictures and Updates 11/14/2009

Saturday, November 14, 2009

Pictures and Updates 11/14/2009

Here our some pictures from the last couple of days. We really have no news to update. Travis is growing a little bigger every day. He lost some weight initially after surgery, but has steadily grown a little bit every day. He is now weighing in at a stout 6 pounds 10 ounces. Remember he was only 6 lbs 2 oz at birth. He is also starting to really move his head around trying to look at things. He also stays up a little longer after his feeds.

They will be starting all of the test again on Monday to prepare for his surgery on Friday the 20th. This should be a quiet weekend and quiet week leading up to Friday. Enjoy some of the new pictures, he is getting a real personality these days.

I like to chew on my fingers.

Travis looking a little confused about things.

This is what Travis looks like while he is getting burped.

Travis sleeping contently in his temporary crib.

Travis and Me enjoying a quiet Saturday.

Nicole and I have fed Travis during every feeding except the overnight ones.

Travis just loves to show his hands.

Travis has an itch in his eyes.

Travis looking at his mobile.

Mommy and Travis hands

Travis is always sleeping with his mommy.

Travis was showing off his evil red eyes at the nurses.

Travis is such a curious little bugger.

Travis gets awful tired after eating his yummy milk.

2 comments:

AnonymousNovember 15, 2009 at 9:21 AM
Beautiful, beautiful pictures. Without them I would not know my Grandson. He is absolutely the cutest! Waiting patiently until the day I can hold him, kiss him, and spoil him forever.
Love to all of you! Luv, Nana Sue
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AnonymousNovember 18, 2009 at 12:47 PM
Oh my goodness! He is soo, soo cute!!!!

Jen Wharton
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....