Team Travis: Sunday Night Update and Pictures

Sunday, November 29, 2009

Sunday Night Update and Pictures

The news of the day is that Travis is steadily re-learning how to eat. He had a o.k. day with it. It is a slow and steady progress as his body has gone through such major changes. They started him on 5 cc yesterday and continued to increase it every other feed. He was up to 25 cc tonight when we left him after the 9 pm feed. He only eats what he can and then they put the rest down his NG tube.

Trvis has had some girgling noises in his chest. The doctors say it could be some fluid going down into his lungs or some congestion from the respirator. They want to keep an eye on it. Nicole and I are asking for prayers that this issue is minor and goes away fast.

Nicole and I both got to hold him again today. He has so many wires that it is scary. Well lets pray for a good night and a good Monday.

The Lucky Charm is still rolling. Travis has been around for 6 games and 6 Charger victories.

Enough Said!!!

Travis ready from head to toe for the Chargers game.

Look at all the wires that Travis still has...

I got to hold him tonight...Yeah!!!

1 comment:

Wodzisz FamilyNovember 30, 2009 at 9:18 AM
I will pray for the noise to be nothing...it probably is not a big deal at all. You look so comfortable holding Travis...my husband wouldn't hold Hope until the wires were gone.

You are still in my thoughts and prayers every day.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....