Team Travis: Sunday Morning Update

Sunday, November 22, 2009

Sunday Morning Update

Travis had a great night. His blood gas levels have been looking good and they continue to wean him from his vent settings. The surgeon even considered closing up his chest today. He is so strong he is trying to move his head already. They don't want him doing this yet so they gave him some extra sedation. He is sensitive to light and sound right now, so they are still asking us to just visit him for 5 minutes every hour.

So Nicole and I are just sitting in the waiting room shopping online for Christmas presents. Current score Travis 4 - Others 0. Nicole drew the line when I asked to buy "HIM" the Wii Gaming console. Thought I could get away with that one.

Will keep everybody posted.

Oh by the way, Travis has his hat and bib ready to go for the game today. He says, "GO CHARGERS!!!"

5 comments:

Wodzisz FamilyNovember 22, 2009 at 1:02 PM
I am so happy for all of you! It truly is amazing to see these little ones after surgery.
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Sarah K.November 22, 2009 at 5:57 PM
I'm so glad he is improving. I'll continue to pray for y'all.
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The BadgersNovember 22, 2009 at 6:31 PM
Thank God for his continued recovery! Looks like great work by all the doctors! We'll pray for continued recovery (hey, even the Chargers are recovering!).
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AnonymousNovember 22, 2009 at 8:56 PM
Praying for you little one...

Debbie...
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AnonymousNovember 22, 2009 at 10:44 PM
Thanks for keeping us updated. He is one tough kid. Hang in there Coach and we will keep the prayers coming. He has certainly done something to those Chargers!
The Kuehnle Family
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....