Yesterday we made a trip to the doctor's office because we were worried about Travis' eating. He had only been eating about 60% of his feeds for a couple of days and to top that off Sunday night he threw up his whole bottle. He was also very fussy while we fed him. I knew it was probably gas or something BUT lack of appetite could also signal that his heart is working too hard. So, we went just to check. The pediatrician said he looked and sounded good. He also was weighed and has gained another 9oz (in 1 week). Now he weighs 9lbs 7.6oz. The doctor upped one of his heart meds since his weight has gone up so much. We have another appointment with Dr. Levy (his cardiologist) on Friday. He will definitely give me more reassurance that everything looks good. The ride to the hospital was the first time Travis has been in a car without someone in the back seat to keep him company. At first, he wasn't having it. His paci quickly fell out and the screaming started. I stopped at the gas station down the street to pull him out of the car seat and calm him down since he was tomato red. After that I gave him his paci and he was content for the remainder of the ride. He likes the movement of the car but gets upset when I stop at a long light or in traffic. Friday I have to drive all the way to San Diego with him alone. I HOPE there is no traffic :)
He has set his wake up schedule to 6:30-7am regardless of how hard we try to have him sleep a little longer. I think the shades let in too much light because when the sun starts to come up, so is he. We are trying to get him into the EASY routine (from a book called the Baby Whisperer) . It stands for eat, activity, sleep, you time. He does pretty well with it. And, he is sleeping fairly well at night. He has one long 4 hour stretch from 10-2 or 2:30 then up again at 5:30 or 6. He LOVES to play in his play palace and his vibrating bounce chair. He got a lot of fun musical/light up hanging toys that he loves to swat at while playing. I'm not sure he knows that he is doing it but he seems to be having fun. He has been cooing more and more AND he is smiling much more frequently at us (mostly at daddy). We are trying to get him more interested in sleeping in his pack and play. He'll SOMETIMES take a nap there but often he wakes up crying and wants to sleep on me or Roger. I am learning how to get little things done here and there while he is sleeping in the PandP.
We are getting nervous for the heart cath procedure. It should only involve a one night stay but we'll be going back to the NICU and when we left there it felt like SO LONG before we would have to be back. This past month has gone by very quickly. Keep Travis in your prayers and pray that his appetite comes back full force and that his heart cath procedure goes smooth and that they find minimal narrowing!
I'm not sure about Roger but I feel a little bit as if we have the plague. Like people are avoiding us. We've been home a month with our little one but haven't seen or heard from many people. I know people are probably just giving us space and are afraid to pass any germs to Travis. Remember we can still see you....let's get together! It just breaks my heart that I can't bring Travis out and about to meet everyone or just to go to Target without the fear of him catching RSV or some other germ. I am a social person and it has been a long time (since his birth) since I've been able to just hang out with my friends. I feel lonely...I don't want to lose myself. Thankfully, Roger got out to go watch the San Marcos vs. Mission Hills game this past weekend. That felt some what normal.
Happy New Year everyone...what is your resolution?
Happy New Year! Travis sounds like he is doing great. I know the eating thing is hard, but there may be times when his eating pattern changes...don't know why, but it is probably nothing. Hope is the same in the car...she loves it as long as we are moving, but can't stand it when we stop. You all are in my thoughts and prayers every day.ReplyDelete
Glad to hear things are going well at home! Lulu did the crying at stop lights thing for a long time. They eventually outgrow it. Then they just sleep and sleep and sleep in the car. And, heh! Sleeping until 6:30-7 a.m. for a baby is fantastic! Some of my friends' babies only sleep until 5 a.m. One of the more unfortunate aspects of parenthood is that you are forced into being a morning person. Marc and I trade sleep-in days on the weekends. I sleep in on Saturday while he gets up with Lulu and he sleeps in on Sundays. We'll be thinking of you guys as the months come and you get closer to Travis' next set of procedures.ReplyDelete
Hi there! I found your blog on a link from a link from another HLHS site. Anyway, my name is Amy and I am 34 weeks pregnant with an HLHS baby and have found great inspiration in your site. Travis is so cute! I'll be praying for your family in the months ahead!!!ReplyDelete