Team Travis: Time Flies, but pain doesn't go away.

Sunday, August 26, 2012

Time Flies, but pain doesn't go away.

It has been crazy busy for the DiCarlo Family the past few months.

Quick Recap:

Brynn Kristina DiCarlo was born June 1st, 2012 (Above)
We moved .5 miles to get a fresh start. Could not stand the thought of giving Travis' room to baby Brynn
Nicole got a new teaching job in Poway Unified School District. She is now teaching 5th grade.
Addison is now almost 2 and is such a firecracker. She has all these little quirks that remind us of Travis all the time and it just makes us smile.

We are just trying to live life the best that we can. There isn't a day that goes by that we don't think of our boy. We have a wall in our new home to display all of Travis' favorite stuff and things that remind us of him. It also has the quote "An Angel Watches Over Us" This keeps him just a little closer to our hearts some days.

As for now, life goes on. The frequency of people that talk to us about Travis has gone down and that makes us sad. But we are always open to spread his story and TEAM TRAVIS will live on forever.

2 comments:

Connor my little frogAugust 26, 2012 at 11:05 PM
Just wanted to know since the day I read your dear baby boys story it he has always stayed in my heart and mind the love you see you have for him is amazing and I wanted you let you know how much he has touched my heart and soul
Sending my heart hugs
Ivy murphy
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Jessica MakuhOctober 14, 2012 at 4:04 PM
I think of Travis often. In fact, the thank you card you sent after he died is still on my fridge. I don't plan on removing it anytime soon. Take care.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....