Team Travis: Pictures and Updates

Thursday, December 31, 2009

Pictures and Updates

There really is not much to report. Travis is doing so good with no real issues. He is still eating really well and we are starting to get into some routines. I think we got the medicines down pretty good and he does a really good job of taking them. Nicole and I share the nighttime routine and that is going relatively smooth. It is going to be really hard for me to go back to work and leave Nicole and Travis for the entire day. It has been really nice to have this winter break to get accustomed to having a son. I am going to miss my little bugger.

Take care and HAPPY NEW YEAR!!!

Carol and Mark Kuhn (Our Pastor who married us) taking care of Travis/

The DiCarlo Family 2009

A Travis Sandwich Kiss.

Travis showing off how strong he is getting. Check out those Neck muscles.

Check out Travis' Mohawk.

What's Up World!!!

Check out this cute outfit, especially the bear feet.

MORE PICTURES

Travis Album 12/27-30/2009

http://cid-d843a26bcc8dd2a4.skydrive.live.com/browse.aspx/Travis%201227302009

Travis Album 12/31/2009

http://cid-d843a26bcc8dd2a4.skydrive.live.com/browse.aspx/Travis%2012312009

2 comments:

AnonymousDecember 31, 2009 at 11:23 PM
Hi Travis,
You are the cutest and toughtest baby boy I know!!!
Love, your Grandma's friend, Jodi
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Morgan @ the818January 2, 2010 at 9:21 AM
Nicole, he is too cute with that mohawk! Looks like he LOVES being home!
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....