Team Travis: Pictures and Highlights

Thursday, December 3, 2009

Pictures and Highlights

Wednesday Highlights:

Sleep, Eat, Poop,

Throw up NG Tube and 10cc of high quality breast milk.

Nicole "accidentally" pulls PICC Line out while changing diaper. (This scared the heck out of Nicole, it was ok and not a big deal)

Pacemaker was lowered to a lower setting.

Got our Discharge Preparation Binder. (First step home)

Thursday Highlights:

Sleep, Eat, Poop
He is weighing in at 3.32 kg which is 7 lbs 2 ounces

Pacemaker is turned off, but still attached

Talk of moving Travis is to a step down unit. We would have our own room and the ability to stay the night with him.

Nicole and I went to Baby Prep Class. This was a class on taking care of Travis when he gets home.

You can tell the Travis is the son of 2 teachers. He is already perfecting the LOOK!!

Nicole got a couple of pics of Travis without his NG tube.Travis and me having some quality time. I am not sure what is growing bigger, the pacifier or Travis. Sleep is good!!!

2 comments:

Wodzisz FamilyDecember 4, 2009 at 6:25 AM
Praying for step down soon! He is doing GREAT. You have to be so proud of your little man. You will have the same Sleep, Eat, Poop updates when he comes home.
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AnonymousDecember 4, 2009 at 10:03 AM
Sleep, eat, poop....sounds like the life!

-Aunt Tina
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....