Team Travis: Home Pictures and Albums

Thursday, December 17, 2009

Home Pictures and Albums

Our life is starting to become a new type of normal. We have given Travis a bath, went for a walk, and tomorrow we are going to take our first trip out. (Doctor's appt.) We are starting to get organized with his medications, feedings and his night care. Nicole is so organized with everything she does. She made up a medication schedule that makes giving his 7 medicines much easier. She also made a worksheet for us to keep track of his feeding, sat levels, poops, and temperature. The doctors did not ask for that information, but we feel like it is a valuable tool for us to keep Travis on track.

Have a great day and thanks for following our special boy.

Pictures from the last couple of days at home.

Travis all ready for his first stroller ride with the dogs.

The DiCarlo Family (Roger, Nicole, Travis, Vinny, Zee)

Mommy in control.

Daddy got his turn to take the lead.

Travis got his first real bath at home last night.

Travis checking himself out in the mirror.

Mommy and Travis after a successful first bath.

Travis enjoying his new swing after another great day at home.

I decided to put some more photos on a photo album, just in case you can't get enough of our little man.

Pictures 12/15/2009
http://cid-d843a26bcc8dd2a4.skydrive.live.com/browse.aspx/Travis%2012152009?ct=photos

Pictures from 12/16/2009
http://cid-d843a26bcc8dd2a4.skydrive.live.com/browse.aspx/Travis12162009?ct=photos

Pictures from 12/17/2009
http://cid-d843a26bcc8dd2a4.skydrive.live.com/browse.aspx/Travis%2012172009?ct=photos

1 comment:

Sarah K.December 17, 2009 at 9:11 PM
Y'all look so happy. Congratulations on your little man finally coming home! Merry Christmas!
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....