Team Travis: Pictures and Updates 12/12/2009

Saturday, December 12, 2009

Pictures and Updates 12/12/2009

Travis' Crib....All medicines are given orally. He is only attached to the monitors and still has his Pacer wires on. They plan on pulling them tomorrow.

They have a TV in the room, so this will be similar to what life will be like at home. Me watching T.V. as Travis sleeps on my chest. He is super small still even though he is now a 8 pounder.

This was the old IMU room. It was a double and not so big. We like our new spot for now.

GET ME OUTTA HERE!!!!

This is our private room in the IMU. Very nice.

Travis just hanging out and playing with his toys.

Travis is so cozy when he sleeps.

Travis is so comfy on his daddy.

Travis has his keys and is ready to get out of here.

1 comment:

Grandma SueDecember 12, 2009 at 3:40 PM
So Happy we will be seeing him safe at your home in a few days. Grandma knows he has so much to tell me. It has beed quite a journey. Keep up the excape plan...that is after the Doctors give him a good once over first.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....