Team Travis: Tested

Wednesday, March 30, 2011

Tested

"But her pain right now is deeper
Than her faith in God and Church"

3 comments:

AnonymousMarch 31, 2011 at 10:40 AM
Dear God, PLEASE give this family some relief...somehow. They are going through the worst trauma one can ever experience in life.....EVER...
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quadmomApril 1, 2011 at 6:25 AM
I was looking through my old blog entries and found a comment from you back in May 2010. I clicked over to your blog and have been reading Travis' story. There are tears in my eyes as I read of your losing your sweet baby boy. He is so beautiful, such a radiant smile and gorgeous eyes. There are no words, nothing that can make this better for you, but please know I am thinking of you, praying for you, sending you strength.
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ShannonApril 13, 2011 at 3:03 PM
Nicole, I missed you Wed. at the EC meeting. I hope you come back if you think it would help. I think of you often.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....