Team Travis: Another Week has passed

Monday, March 28, 2011

Another Week has passed

We have made it through another week and I must say that the pain of losing our sweet boy is getting worse and worse. The reality of all of this is just too much to handle sometimes. Nicole and I have gone back to work and when at work we seem to do ok. It just feels like Travis is just away for the day. When we head home the thought of him not being there makes the drive unbearable. Even when we had a bad day at work, getting home to see his amazing smile made all the stuff at work seem meaningless. His smile was special. To think that we will never see his smile again makes it really hard to function.

4 comments:

Kellee the CaffeinatedMarch 28, 2011 at 12:40 PM
I am so sorry that things seem to be getting worse when they should be getting better. Just remember you are surrounded by tons of people that care and love you (totally lame I know) but it's totally true!!!!

Kellee
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AnonymousMarch 28, 2011 at 1:53 PM
Speechless, but praying for you guys. Praying for some sort of relief.
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AnonymousApril 19, 2011 at 1:01 PM
Roger and Nicole, This is what we call morning. It doesnt go away but time will help. Be patient.
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AnonymousApril 20, 2011 at 5:21 PM
Take all the time you need.Be patient with common people who know not what to say. They cant even imagine your loss. There are no right words.Grieve for as long as you wish.I understand.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....