Team Travis: Straws

Friday, February 25, 2011

Straws

My heart is so heavy today. All I can think about is how Travis loved to drink water from my cup using the straw. He wasn't very coordinated at it....his tongue stuck out a little underneath and he always spilled water down his shirt. How do I move on? I miss him so bad. This isn't fair.

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5 comments:

LaurenFebruary 25, 2011 at 4:04 PM
My heart is aching for you and your family. My son Caleb passed at 3 days old, and I'll be forever changed by him. Lots of heart hugs.
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LauraFebruary 25, 2011 at 8:39 PM
I love your memories... every one you are sharing. I'm enjoying Travis so much as you share such sweet, specific details of his wonderful personality. You are epitomizing the saying "we don't remember days, we remember moments." Keep writing them down...each one is gold.

And, you don't move on, I believe, anyway...Time takes you forward...it just pulls you with it.... Somehow little, by little, for me, I'm just learning to live with constant heartache (plenty of people live with chronic pain...for me, this is how it is...) but it is heartache combined with a calling to show how much Gwen's life blessed me, which keeps me from completely being over-taken by the pain and longing... your Love for Travis will always be your saving Grace even as it is the very essence of your pain (the most horrible pain no one can begin to imagine...because it stems from the deepest root of Love) ... at least that is all the case for me...and I'm spewing words here when really, I just want to send you love so much love and care... and thoughts of Travis and tears...
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AnonymousFebruary 26, 2011 at 10:44 AM
You are one week strong!
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KellyMarch 2, 2011 at 8:48 PM
be strong for your little girl
I honestly admired you .
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AnonymousMarch 4, 2011 at 12:04 AM
Laurie said it perfect...u never move on...time just pulls u forward...but u r not expected to move on. Travis is a big part of who u are and that will never change. Your memories r so precious in that you did take time to recognize and enjoy the little moments that people in other situations might not have and u can see that Travis was so Happy and loved and u can see he adored his mama n daddy n sissy and jus so full of love. That love he was full of came from having such wonderful loving parents. You WILL BE REUNITED! Please dont lose faith in that. Much love to you and your family. I will never forget your precious boy.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....