Team Travis: Home

Saturday, February 19, 2011

Home

We are home. I'm not sure what to do now. Every single thing here is about our sweet angel. It doesn't feel real.

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7 comments:

UnknownFebruary 19, 2011 at 4:55 PM
Nicole & Roger,

I am Stacey Lihn's husband, so obviously I know of Travis and his journey. I was devastated to hear the news today. I wish there was something I could say or do to ease your pain. Your family is in our thoughts and prayers.

Caleb
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LaurenFebruary 19, 2011 at 5:03 PM
My heart goes out to you and your family. Fly high sweet Travis. You are deeply missed.
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In With the LightFebruary 19, 2011 at 5:26 PM
I am so so sorry for your loss. I found a link to your blog from The Bump and I just want you to know that there are thousands of women praying over your family right now. May you find peace and comfort soon.
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LCs Music Monster craze(lcm2craze)February 19, 2011 at 5:47 PM
Nicole Im so sorry to hear about Travis...I know what your going thru ..I went thru something similar with My Son, Timothy...I had to also make that extremely difficult decision.
Tim went thru a bronchoscopy and reacted to the anesthesia-coded for 45 minutes and later that night coded for a second time..At that time My Mom and i made decision to let him go....His EEG results were the same as Travis's were....
Please know that you made the right decision...Sometimes it may not feel like it but stop yourself when you get those doubts and know in your heart you did the best that you could do....
I know the sadness, shock, and emptiness that your feeling right now...Please and when your ready - if you want to talk at anytime don't be shy!!!! Be easy on yourself and be patient with yourself... know that we are all thinking about you and your family... I know Travis and Tim are up with the "Big Dog" and watchin over us...
Laura
Proud Mom to SWAN and CHD Angel, Timothy
Lauratwc@yahoo.com
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a mom in mass...February 19, 2011 at 6:00 PM
Your loss leaves a heartache no one can heal, love leaves a memory no one can steal.

There are no words that can appropriately describe how sorry I am for your loss. Travis' pictures are adorable and his journey magnificent. Special prayers for your angel and your family...

a mom in massachusetts...
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Karen SalvaggioFebruary 20, 2011 at 12:53 AM
Our family is deeply, deeply saddened by the tragic loss of your beautiful Travis....His battle was courageous, and no child could ask for a greater measure of love, devotion, or complete commitment than what you provided to him while he was here with us.

Our thoughts and prayers are with you, and with your extended family. We can only hope that the love and support of your family and friends will, in some small measure, help ease the burden of your loss.
Karen Salvaggio
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AnonymousFebruary 20, 2011 at 7:33 AM
Dear Nicole and Roger, and also to Grandma Sue and all the Family,
This is Betsy, Don's sister. I'm thinking of you all and holding you the Heart. I never got to meet Travis face to face, but I want you to know that his life touched me, touched my entire family. I can only try to imagine the grief and sadness you are going thru. I send you all Love and Blessings. Betsy
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....