Team Travis: Fear

Wednesday, February 16, 2011

Fear

Little warrior is in bed and little sis is off to grandmas for awhile. Roger and I are packing and getting things ready for tomorrow. Today was difficult, and I can only imagine what tomorrow holds. Poor little guy is so fearful of the hospital now. He screams when they weigh him!

I have cried so many tears today.....I am praying for peace tomorrow so that I can be strong. I don't want to show my fear to Travis. He needs my strength....but my God, this is too much. I just want to take his pain away. I just wish this was all a nightmare that we could wake up from.

Surgery is set for 7:00am tomorrow. Surgery should take between 4-6 hours. We will be updating the blog and facebook when we can.

6 comments:

Kellee the CaffeinatedFebruary 16, 2011 at 9:24 PM
Your family is in my thoughts! I will be waiting to hear how well he did! *hugs* to that sweet little man!!!!
ReplyDelete
Replies
UnknownFebruary 16, 2011 at 10:20 PM
My family will keep your son and family in our prayers! Be strong!
ReplyDelete
Replies
Wodzisz FamilyFebruary 17, 2011 at 5:01 AM
You all are in my thoughts and prayers. I pray the surgery goes well and the recovery easy and quick.
ReplyDelete
Replies
mom2loFebruary 17, 2011 at 6:23 AM
Praying for you, Travis and the entire team working on him this morning. Keep us updated!

((Heart hugs))
Kathy
ReplyDelete
Replies
The Simmons FamilyFebruary 17, 2011 at 7:18 AM
I feel your pain. We're praying for a successful surgery. Owen has HLHS too and just had his 3rd ohs in hopes to get him to the fontan this summer. My heart is sad that you have to send Trav off to the or today. Good luck and don't mulls the tears back..just let them out. It feels so much better afterwards!
ReplyDelete
Replies
UnknownFebruary 17, 2011 at 7:29 AM
Woke up around 6:30am and started praying for Travis... hoping you are doing well right now and Travis is sailing through surgery.
ReplyDelete
Replies

Add comment

Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....