Team Travis: Pictures and Update 1/10/2009

Sunday, January 10, 2010

Pictures and Update 1/10/2009

We have been extremely busy around the house and working on getting a schedule set. I went back to work last week and that was very stressful on Nicole and I. I really miss the little dude during the day. Nicole is doing great with Travis at home. She is also adjusting to life at home with a new baby and learning to take care of things when Travis sleeps or plays in his play palace.

This week will be a tough one, because we have his heart catherization on Wednesday. It is supposed to be a routine procedure, but it is always scary to go back to the hospital. He is required to spend the night at hospital to recover from the procedure. We hope that everything will go smoothly and he will be back home on Thursday.

We will keep everybody updated as this week is another important one in his journey.

Travis saying hi to his lion puppet.

Travis playing in his new vibrating seat. He loves the elephants.

Travis' eyes are just beautiful.

Travis just hanging out in his new exercersaucer. Notice the beach towel behind him. He is not big enough for it, but we propped him up, so he can play.

So far Travis likes going to the doctors office. His favorite part is hanging out with no clothes on.

Travis working on his eye-hand coordination in his play palace.

Tracis wore out after some tummy time.

This is one of the many medications Travis has to take. He is pretty good at taking them.

Formula does a body good, He is weighing at 9 lbs 8 ounces.

Holding up these big cheeks really tuckers Travis out.

Look at those big eyes.

Went to a birthday party today and Travis met the Hooter Girls. Lucky Boy

Bunch of photos from the past week....

http://cid-d843a26bcc8dd2a4.skydrive.live.com/browse.aspx/Travis%202010?ct=photos&sa=368253062

1 comment:

MeghannJanuary 11, 2010 at 7:20 PM
It was great to finally meet the big man today! What a sweetie! I hope to catch up with you too next time I come up! Meghann
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....