Team Travis: 3 month update...

Monday, January 25, 2010

3 month update...

Travis turned 3 months old on Saturday! His first three months have definitely been a crazy journey. We are loving having him home and everyday gets more and more exciting! Travis has been home for 5 weeks and we are really getting the hold of this baby thing. We have Travis on a pretty good schedule now. His sleeping patterns have gotten a whole lot better. Typically, he sleeps from 10:00pm to 3:00am, back to sleep until 6:00am, and then up for good at 7:30am. He is up to bottles of 80ml/cc each feed. He hits the 80ml mark sometimes, but his minimum is usually 65ml/cc. This is awesome for him! We bought a fancy scale so we can monitor his weight at home and we get excited each time we weigh him! Travis has found his voice. He is cooing and laughing a lot now! He really grips your heart when he smiles at you! He is starting to grasp things with his hands and can hold on to toys attached to links. He has a favorite toy now....its name is Sophie the Giraffe. He loves to eat Sophie's legs. He is also learning how to bring his hands to his mouth. Several times we have found him sucking his thumb or some fingers in his mouth. It's only a matter of time until EVERYTHING is in his mouth!

Thankfully, because the doctor's feel he is doing so well, we don't have another doctors appointment for Travis until February 17th.

We just love our little guy and cherish every moment we get to spend with him. It is amazing how well he is doing and how quickly you forget how much he has gone through. When he smiles it takes away all of your stress and melts your heart. He is truly a miracle baby. We could not be more proud of him. Our little fighter!!!

Travis and Mommy working on sitting up.

Travis is always rockin' the cool clothes.

Who can rock a sweater jacket better than T.G.D?

No comments:

Post a Comment

Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....