Meanwhile, we were waiting for Travis' doctors and surgeons to all get together and discuss the plan for him. Today we received "the call". Dr. Levy brought his chart and information to the surgeon's at Childrens and the consensus is.....we stick with the original plan. Travis will be scheduled for a heart cath in 2-3 weeks. In the cath, they will open up the aorta. Then, they want to do his Glenn/Fontan combo anywhere between 17-20 months of age (hopefully, the latter). It would be better for Travis to be bigger and stronger before the next surgery. So, although we are still anxious, we are happy that (for now) we are back to only one more surgery.
In other news, Travis is sleeping in his own bed! Almost two weeks ago we started putting him in his bed. For the first week, we stood there by his bed until he fell asleep. This was working okay EXCEPT he woke up every few hours and I'd have to go in there and stand there until he fell asleep again. After a week of VERY broken sleep, we decided to do cry it out. Travis needs to learn how to fall asleep without momma or daddy there. The first night was so scary. We let him cry for intervals (5 min, 10 min, 15 min) and it lasted 1 hour. Roger and I were so scared. We were worried that it was stressing his heart. But, after awhile he fell asleep. I am happy to report that every night since then has been a bit better!!! Now, I need to get naps figured out. He just will not take a long nap in his crib. Hmmm, I only have a week left before I got back to work to figure it out.
Please pray that he kicks this croup quickly! Thank you!
I am praying he gets the croup out fast.
ReplyDeleteThe sleeping situation is always hard. Hope still sleeps in our bedroom...basically because the only other bedrooms are upstairs and that is not going to happen. I am hoping she will move out of our bedroom by the time she is 20 (hehe).
Awww poor little guy!!! Hope he is feeling back to normal soon!!!!
ReplyDeleteThat's awesome about his bed!!! Go Travis!!!
~Kellee
I hope he feels better soon!
ReplyDeleteNicole,
ReplyDeleteAlmost every time Trevor has a cold, he gets the croup. I've heard that if they have reflex, that they can get croup a lot. I don't think this is the case with him. We have had a lot of throat issues with him. He had a cyst removed, which they think it was from being intubated. Two years ago he was vomiting daily, to a few times a day, which went on for 7 months. After lots of tests nothing could be determined. It is something I am going to bring up before his next procedure, as the constriction in his throat concerns me. His big brother has eocinophilic esophagitis (sp?)...basically eczyma of the esophagis. He has to take steroid medicine and has 1 to 2 endoscopys a year. Hopefully Trevor doesn't have it. If you ever find out more on the croup let me know.