Team Travis: Late Night Wednesday Update

Wednesday, May 5, 2010

Late Night Wednesday Update

Travis has been extubated for several hours. Nicole and I are sharing the nightime duties with Travis. He has been extremely restless tonight. They gave him so morphine and he calmed down, but then they tried to clear his throat and clear up some of the junk. He has not really slept well and is really moving around. It is amazing to me that he can move so well after just having surgery. He is arching his back, flailing his arms and trying to roll over. He just can't get comfortable. Hopefully he can relax a little bit and let the medicine take its course.

Later on today they plan on removing a bunch of lines. He is doing so good and recovering well. The room is getting a whole lot less crowded from all the machines. That is always a good sign.

Travis was waking up a little bit. He got some Tylenol (Generic of course because of the Recall.

Travis opened his eyes to see what was going on earlier in the day.

Travis finally got to sleep. He had a restless night and could not get to comfortable.

3 comments:

Wodzisz FamilyMay 5, 2010 at 4:53 AM
Isn't is amazing and scary how fast they start moving around this time around. I was happy and nervous during the last stay. I am keeping you all in my thoughts and prayers for an easy and fast recovery. BTW...I like the website changes!
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amitchmaherMay 5, 2010 at 7:29 AM
Glad he is doing well. Just said my morning prayer for him. Hope you all have a good day!
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grivsmomMay 19, 2010 at 1:43 PM
OMG, I didn't know about the tylenol recall :s !!!
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....