Team Travis: Five Things Friday

Friday, February 12, 2010

Five Things Friday

1. Today, we visited beautiful Seaport Village in San Diego. we had a good time walking around and shopping. Travis just hung out the entire day checking things out. He is getting so big and alert. He hates being in his stroller for long periods of time but is just fine when he is being carried facing out so he can see everything. We also bought Travis his first little golf club made of wood. It has his name on it. Here's hoping he's a golf star ;)

2. We stopped for lunch at this grill on the water and while we were eating, an older gentleman walked by us and saw Travis sitting on my knee. Travis was just looking around hanging out, being super good. The man stopped and said sarcastically, "What a tough life you have little man". He was trying to be funny, but when he walked away Nicole and I had to laugh. He has NO IDEA what this precious baby has gone through. If he only knew...

3. Travis is sleeping a lot better during the day and sleeping for longer at night. He is also eating like a champ. He sometimes eats 88ml! I remember when we were excited he ate 5ml. He is also growing very quickly. He is weighing in at 11 lbs 2 oz (as of 2/13).

4. A co-worker/friend of mine at the high school had a baby last week. The baby went home and the next day he stopped breathing for a few seconds. They rushed him to the hospital and he has been there since last Saturday. Baby E has had some more episodes of apnea (not breathing while he sleeps) since he arrived at the hospital. He also having a problem with his heart. It is not a major issue that will require surgery, but should fix itself in its own in time. They are still running a ton of tests on Baby E to try and figure out exactly what the problem is. Please pray for Baby E and his family for a quick recovery. Being at the hospital with your baby is one of the hardest things ever. Pray they come home soon.

5. Travis is starting to talk alot more now. Of course when I tried to tape him talking he stopped. I got a second or two of it. It is really amazing to see how he is growing so fast.

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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....