Team Travis: Anxiety

Tuesday, October 20, 2009

Anxiety

5 days and counting until Travis is here with us. That alone is enough stress for me. Now, add that to the fact that our little newborn son will have a complex heart surgery on the 29th and then you can get the idea of the anxiety I have right now.

I am off from work this week and taking this time to get things ready for our journey ahead of us. Getting bills paid, chores done, things ready for a long hospital stay followed by a newborn coming home. It has been nice to nap at any time I want....however, It is NOT releasing any anxiety I have. I just can't get my body to relax and give it over to God. I am so scared. My fears are overwhelming. So many unknowns...

We have another appointment tomorrow with Dr. Piacquadio. She'll check me to see if I have had any progress towards labor and we'll go over the game plan for Sunday. I'll update tomorrow night.

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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....