Team Travis: Heart Echo appointment Tomorrow

Monday, October 18, 2010

Heart Echo appointment Tomorrow

I know that we haven't updated the blog in a long time, but things have been extremely busy and there is not really a lot to report about Travis.

Tomorrow we have his 1 year heart echo. Hopefully this will answer a lot of the questions Nicole and I have regarding Travis' little heart. He seems to have nothing wrong with him. He is super high energy and crawls everywhere now. He is super fun and learns some new trick everyday.

We are excited about the appointment tomorrow, but also scared.

We will update any news this week.

Roger

3 comments:

AllisonOctober 18, 2010 at 8:44 PM
We will be thinking of you and praying for all good news. Looking forward to the party this weekend.
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Wodzisz FamilyOctober 19, 2010 at 4:18 AM
I will be thinking of all of you. I can't wait for the 1st Birthday Post!
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StaceyOctober 19, 2010 at 11:30 PM
So sorry to hear about the bad news. It always outweighs the good, doesn't it? We'll be thinking and praying for Travis. Zoe had two stents placed interstage into her BT shunt. She didn't have any complications with them and advanced to her Hemi-Fontan which she sailed through about a month ago. Zoe's left pulmonary artery is small also and they are keeping an eye on it. We were told that if it doesn't grow with her, they'll have to balloon it open.
Please keep us posted.

Take care of yourselves and your little dude.
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....