Team Travis: Travis playing on his mat.

Tuesday, August 31, 2010

Travis playing on his mat.

Nicole and I are back to work and have been extremely busy. Travis has been doing great. His last cardiologist appointment went really well and he is physically where they want him to be for now. The plan is very uncertain still as far as the next surgery or surgeries. Travis will eventually outgrow the conduit that they inserted in his heart and that will be the indicator for the next surgery. All of his saturation levels have been in the 80's and that is perfect. Eventually the saturation level will decline and that will one of the signs that he is ready for surgery.

Travis is getting a little bigger. He is now 16 pounds 10 ounces. We are hoping that he triples his birth weight by his first birthday which is right around the corner.

1 comment:

Grivs momSeptember 1, 2010 at 10:34 PM
Hi guys !!
Travis look soo good:D and big !! we lost our appointment so they reschedule for next month so we don't know the plan yet, we're planning Griver's 1st birthday party :) !! on October 30th its going to be a costume party it will be awesome if you guys come :D Danny Miller ( the NICU nurse) and other nurses will be there :D
it's going to be in TJ , really close to the border I will send you the invitation and the map via e-mail
:)
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....