Team Travis: 1 Year Ago....

Friday, June 25, 2010

1 Year Ago....

One year ago today Roger and I received the diagnosis that our unborn baby had HLHS. We will never forget the exact date that this news came because after a horrible and emotional drive home, we heard the news that Michael Jackson had died. Wow......what a year it has been. We love this little guy more than anything and can't even imagine what life would be like without him! God, thank you for giving us our miracle baby and please, please, please let us keep him here with us for many, many more years!!!

In other news: Sorry for the lag in posts. We have been super busy! We sold our house and moved to a new house about 15 mins south of where we were staying. And, might I just say it is ridiculously hard to pack/unpack with an 8 month old!!! I also had to move to a new school. I have a crazy amount of materials in my classroom so that was quite the ordeal as well. Anyway, we have some great pictures to post and some updates to post when we can find the time.

2 comments:

Kellee the CaffeinatedJune 25, 2010 at 11:35 PM
15 minutes south? so are you in fallbrook now?

your have such a wonderful little family and travis is such a trooper!!!!

so glad that we have become friends nicole!!!

hugs,
kellee
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A Lady Called AmyJune 26, 2010 at 7:45 PM
So glad you've had a year with your handsome little man. Praying with you that you can enjoy many more. Good luck with unpacking! (My baby just turned nine months, I know a bit of what you're going through!) :-)
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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....