Team Travis: Six Things Saturday

Saturday, April 10, 2010

Six Things Saturday

We didn't get around to posting Five things Friday so instead we are posting Six things this Saturday.

1. We went to the cardiologist this past Wednesday and we brought up a concern that Travis did not seem to be gaining weight as quickly as he had been. The cardiologist mentioned that is to be expected as we get closer to his next surgery. His heart is working harder and therefore burning more of the calories he is eating. He mentioned that we might want to try solids a few weeks early to see if that might help. Travis loves eating his cereal....we will try vegetables over the next week or so. Before yesterday's bath we were happy to see that Travis has gained enough to cross over the 13lb mark! Grow baby, grow!!

2. Travis had a couple of bad nights of sleep this week. He is a bit stuffy in his nose and we think it is keeping him up. We have been taking lots of naps to catch up on our sleep and Roger caught Travis snuggled up with my arm in this picture. Too cute! He must be a side sleeper like daddy!

3. There are two depressed boys and one happy girl in my household now that March Madness is over.

4. Travis' hair is getting quite long and OOC (out of control). We tried to give him a little trim in the bangs and around his ears but he got quite cranky and we couldn't finish. We do the best we can trying to make him presentable. Daddy tried this 'do on him tonight for church. HAHAHA!!

Kind of looks like Bob from Bob's Big Boy!

5. We took advantage of the Stuff-a-bag sale at Babies R Us today and we scored some awesome outfits for Travis. Everything was 24-50% off plus an additional 25% with the coupon. We bought Travis a bunch of clothes in sizes 9-12months so we are ready for his growth spurts! Check out our loot!

6. Tomorrow is Roger's last day of Spring Break. We have had such a great week+ off with him!!! It is so nice to just spend quality time together with no agendas and no rushing around. Now, it is the home stretch until Summer Break!

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Travis Gary DiCarlo

Travis Gary DiCarlo, first son of Roger and Nicole DiCarlo, was born at San Diego Kaiser Hospital, October 23, 2009 with a Congenital Heart Defect known as Hypoplastic Left Heart Syndrome, or HLHS. The short explanation is that Travis was born with only half of a heart. In order for him to live, a series of three operations were planned.

Due to an infection, Travis had to have an additional open heart surgery to insert pulmonary artery bands on October 29, 2009. He had his Norwood Surgery on November 21, 2009. He was sent home on December 14, 2009 from Rady's Children Hospital of San Diego after spending his first 52 nights of life in the hospital.

After being home for several months, Travis was due to for his next surgery in the plan, the Glenn procedure. But the life of a cardiac kid can change in an instant and life doesn't always go as planned. Due to the anatomy of his heart and some rhythm issues, Travis had what the surgeons called Norwood part 2. They replaced his Sano Shunt with a bigger one, enlarged his pulmonary arteries and installed a pacemaker. This surgery was performed on May 3, 2010. Travis went home on May 17th, 2010.

Around Travis' first birthday in October his cardiologist detected some narrowing in his pulmonary artery and ordered a heart cath. The heart cath showed extensive narrowing in his aorta and his pulmonary artery. On February 17, 2011 Travis had his 4th open heart surgery. He was doing well with recovery until he suddenly went into cardiac arrest on Friday (2/18). After two hours of CPR Travis was placed on ECMO (a heart/lung bypass). Although his heart did begin to beat again on its own, his brain was damaged during the whole ordeal and he lost all brain function. We had to say goodbye to our beautiful boy on Saturday, February 19th. We miss our boy terribly.....